Why I Share Personal Information Publicly

The following poster was produced by an MS group, but is equally relevant to ME, Lupus, FMS, etc.

The slogan reads:

I'M NOT ASHAMED OF MY DISEASE,

BUT I WISH I DIDN'T HAVE IT.

I HAVEN'T DONE ANYTHING TO BRING

IT UPON MYSELF, BUT I'M DOING

EVERYTHING TO FIGHT IT.

I SPEAK OPENLY ABOUT IT IN ORDER

TO RAISE AWARENESS.

 

I personally pondered a while before reaching the decision that I must publicise the effects of my ‘invisible illness’. When I am out and about, it is due to my experiencing a relatively good day. The vast majority of the time folk do not see me abed in my bed-cell swollen, in pain, suffering various neurological symptoms that militate against quotidian life let alone social contact.

Alas, in today's society where it is now acceptable to bait & hate disabled folk, it is necessary to provide personal accounts of suffering to counter the accusations of “faking it” &/or hypochondria and undermine the MSM lies & propaganda.

As I am reasonably literate and compos mentis some of the time, it is my personal moral duty to make every attempt I can to stand up for disability rights.

If my posts annoy you, feel at liberty to turn off notifications.

For those of you who tolerate my posts, thank you.

And those of you who are kind enough to share the occasional post, my deepest gratitude - and I endow you with brownie-points & fairy-dust! %D

*

MS = Multiple Sclerosis

ME = Myalgic Encephalomyelitis

FMS = Fibromyalgia

MSM = main-stream media

Bored? - The best is yet to come.

 

[Image description: slogan - "THE BEST IS YET TO COME"; © n/k]

I am coming up for fifty-two and I genuinely say and believe that the present is the best part of my life. No regrets. Live each day to the fullest you are capable of. Most days I am trapped abed; but the days I am up & about are very precious. Nonetheless, even those days I am trapped in my bed-cell, through the æther I live to the fullest extent I can.

If you are bored - go for a walk (something I can no longer do);
If you are bored - read a book (something I can rarely do);
If you are bored - cook a meal for a friend (something I can do from time to time with some assistance);
If you are bored - draw, paint, create whatever (something I can no longer do);
If you are bored - go out and dance alone (something I can no longer do) and dance and dance and dance;
If you are bored - write a poem (something I can still occasionally do on those days when I have some nous);
If you are bored - well, you only have yourself to blame. As Zelda Fitzgerald said, "she refused to be bored chiefly because she wasn't boring." ;)

 

Live life whilst you can -

you never know when it will be taken from you!

[video: Pet Shop Boys - Being Boring]