Isle of Man
Greater Manchester (England)
were struck down with an illness and could not work. What a terrible effect this would have on their communities and economies! These are the kinds of figures we are dealing with on a global scale of the numbers of individuals struck down with my infirmity. For those afflicted, their families, loved ones and communities have to care for them. Worse still: the ill probably do not receive, unless very fortunate, appropriate medical care let alone nursing support. The medical establishment in most countries all but ignores the illness and next to no research is executed into finding the cause/es let alone possible treatments.
The illness is more common in the United Kingdom than Parkinsons, Multiple Sclerosis, Cystic Fibrosis, Motor Neurone Disease, and equal to 75% of those affected by all cancers.
Imagine if your government banned you from donating blood or organs, even after death, but then colluded with the medical establishment to dismiss sufferers as only needing cognitive behavioural therapy (C.B.T.) and/or exercise to get better, despite the evidence demonstrating that these do not work.
This illness is Myalgic Encephalomyelitis or M.E. We need help and support now!
Every year the month of May is designated #MEAwarenessMonth and 12th May is #InternationalMEAwarenessDay to co-incide with the birthday of Florence Nightingale, one of the most famous sufferers.
Please consider googling "UK ME charities" and making a donation or even offering your time and service by volunteering.
And yes, whilst I have some good periods, most of my life for the past several years has been abed. The following description very much describes my quotidian experience of the disease. (Apologies to the visually impaired for not transcribing - it's very long!)
[Image courtesy & © MEAwarenessPics]