Monday 27 February 2017

No Food, no Meds, no Care in Trafford

[Image description: assortment of medications in their packaging]

Some of you may have read my blog-post "Disability Discrimination in Trafford" from just over a fortnight ago.

Last week, in a surge of anger I went on to twitter and vented my spleen at anyone I thought might listen at how dilatory Trafford Council have been. Then I slept through the following two days totally exhausted from a combination of the DWP's PIP claim-process and expressing my frustration. I have been physically and emotionally drained ever since, until I woke up this morning with a supply of energy.

Today, I have written to my social worker who had decided to go with two thirty minute slots, one at lunch-time and one at tea-time, but missing out bed-time. [A breakfast call is not suitable for me and is thus not included.] I responded:

Dear [name of social worker],

Thanks for the update.

However, you are wasting your time. Please refer back to the correspondence with yourself, with [name of social care assessor], and my suggested care plan. Your suggestion will mean some 20 mins wasted of a morning session and no assistance for bed-time, with the result I would continue to miss my night-time meds.

The lack of meds over the past few months has meant some of my symptoms have deteriorated sharply.

The fact that neither you, Re-ablement nor the social care assessment team have ensured that you have put in place carers even for the previously assessed needs (Sept 2016), mean Trafford Council has seriously let me down over the past four months. I continue to miss two out of three sets of meds most days and some days all meds. I continue to miss one of the two meals a day I need each and every working day and any day that [name], my housemate, is away at the weekend. During most weeks I am lucky to get one shower/bath now. The situation is outrageous.

Please immediately devise a plan to ensure I am supported appropriately to my needs.

Please immediately sort out some care.

Please immediately forward details of the complaints procedure - although the situation is so egregious, I am considering whether I ought to pursue legal action.



I sent some fifty tweets to media outlets, politicos, disability organisations, etc. I received back just two responses: one from the council asking me to ring them - which I cannot as I do not use telephones due to disability - and the other a link from the CAB abut moving into a new area - yes!?!

So here I am still not being fed (except by housemate of an evening), still missing out on most of my medications and still not receiving the personal care the local authority has already stated and assessed - per their own document - that I need.

Throwing my hands up in the air in total exasperation! Any suggestions?

I am not supposed to get myself stressed: but my heart is pounding, my blood-pressure is up, my temples are throbbing and I think I may need to have a nap.


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