Tuesday, 14 August 2018

ME


ME


Lying abed
hour after hour
Quotidian longueur
Year follows year
inexorably
A prisoner
trapped in the bed
hidden by the blind
out of sight
outside
I want to be out there
living Life
not feeling ennui
or intermittent despair

Twenty birthdays past
when I was free
to simply be
and I danced then
cutting through
floating on
the air
I lived fully
in my body
running
leaping
flying
swimming
singing
joking
laughing
dancing
experiencing
intense Love
kissing
caressing
developing
affinities
my soul

This body keeps me here now
the flesh that struggles to struggle
no longer able to snuggle
in a lover’s embrace
nor for that matter
in a friend’s hug
This same body that’s killing me
slowly
but oh
 so painfully
Weary spirituality
Hope fades
colour drains
into multiple grey-shades
Insufficient energy
to risk mourning
promises of love
No sensuality
No plans
No Future
No happy-ever-after
Readying pain by pain
for an unsolicited here-after
Longing for much more
to be free
of anomie
of constant yearning
of constant envy
to be pain-free again
to awaken a too long-dormant heart
to experience intimacy
to sleep normally
to once again
read a novel cover to cover
entertain friends to a multi-course dinner
play adult games in bed
spontaneously
to be just the older
perhaps wiser
Me


Wednesday, 8 August 2018

It’s Severe M.E. Day. I am a pwME, that is a person with Mylagic Encephalomyelitis and I suffer from the severe form of M.E. My cognitive abilities are not up to writing a blog-post this year. Instead, I give you “Autumn Leaves”, some 90’s chill-out music by Coldcut. The lyrics cited & sampled are:


“But I miss you most of all,

my darling,

when Autumn leaves start to fall.”




Saturday, 21 July 2018

Does the language we use include or exclude?

Anyone who follows me on my social media (Facebook, Google+, LinkedIn & Twitter) will probably have noticed that I am a reader of Joint Public Issues Team (JPIT)'s blog and sometimes repost or refer to their articles. The perspectives are those of four UK churches who work together ecumenically: the Baptist Union, the Church of Scotland, the Methodist Church and the United Reformed Church. During my lifetime I have regularly attended churches of all bar the Scottish member. I was a sunday-school teacher for two of them. Nowadays I feel attached to the Society of Friends, the Quakers. The commonality is our pursuit of social justice.

I subscribe to JPIT's email newsletter and today received:
The author writes that she and the other quarter of a million or so demonstrators are angry:

"Trump represents a toxic cocktail of misogyny, racism, xenophobia and lies."

But note what's missing from this statement: inter alia homophobia, classism and disablism (ableism). There is no attempt to be all-inclusive. The statement by including only certain examples with no caveat, excludes other areas of hostility and discrimination. One way the sentence could be rewritten to be more inclusivist is as follows:

Trump represents a toxic cocktail of hate and lies. Amongst other things, he is a misogynist, racist and xenophobe.

The blog-post continues with a laudable assertion:

"We believe that everyone is made in the image of God and is entitled to dignity and respect and therefore, that discrimination is an assault on the image of God."
By using the term "everyone", this is an all-inclusive statement. However it is then immediately qualified by the very next sentence.
"We believe that everyone is equal in the eyes of God regardless of race, gender or nationality and all are welcome to be part of the body of Christ."

The "everyone" in this sentence has been limited. Again note what's missing: inter alia, sexuality, creed, class, age and disability.

The United Nations (UN), in article two of the Universal Declaration of Human Rights (UDHR) states:


"Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status."
The UN by using the phrases "without distinction of any kind", "such as" and "or other status" ensures that all are included and none are excluded from its definition of "Everyone".

Not only does what we say convey meaning, but what we do not say also is open to interpretation, to inference. If we use exclusivist language, then some will feel or believe themselves to be excluded. Others will take our views as exclusivist of certain groupings.

If one uses the search-box on the JPIT's site, one will find no results for "homophobia", "homosexuality", "homosexual" nor "sexual orientation". There is only one mention of "gay" in a fleeting reference to the mass-murders in Orlando in 2016. By contrast the terms "disabled" and "disability" (but not "disablism") connect to several articles. JPIT raises many important questions and encourages its readers to take action. Are the folk behind the site and its contributors deliberately excluding some groups? I hope not. I suspect that the likelihood is that the matter of being inclusive just had not occurred.

None of us, including myself, are perfect: we all exclude others, either wittingly or unwittingly. Nonetheless, I encourage us all to try to be more inclusivist in the language we use.


Thursday, 19 July 2018

Why are we rubbish at recycling recyclables?


I mainly food-shop from Waitrose, Marks and Spencer (a.k.a. M&S), Abel and Cole (online only) and top-up from my local Co-op.

As much as possible of my purchases are organic/Fairtrade. Even companies that allege they are responsible and care for the environment use multiple layers of packaging or non-recyclable packaging. Why is my cucumber enveloped in an almost impenetrable layer of thick plastic? As a disabled person who is obliged to buy ready-meals to fit in with carer schedules and so forth, it is impossible to buy products that are environmentally-friendly.

Spain has a national refuse disposal system. There are three types of bin: glass; packaging & landfill. At communal points one can also find separate collections for paper & cardboard &/or clothing &/or shoes. All packaging goes in the yellow bins to be sorted/recycled.

Many plastics are recyclable; but here in Trafford where I reside -  likewise I assume the whole of Manchester as Greater Manchester Waste Disposal Authority covers all boroughs - such items as yoghourt-pots and food-trays (clearly marked as recyclable) cannot be recycled via the waste-management systems currently in place.

 [Image description: the three recycling-bins in the writer's kitchen]

I have been recycling as much as possible or selling on at boot-fairs or donating to charity shops since 1994. I have written to the head-offices of the places in which I shop on several occasions enquiring about their packaging & recycling policies. I am doing my bit. The onus needs to be switched from consumers as many of us want to recycle more, but are prevented by systems from doing so. I have been invariably fobbed off with a standard spin of "we are fulfilling our legal requirements". Supermarkets and so forth have switched much packaging to recyclables - but more could be done as the article below elucidates. However, waste authorities need to be obligated to take all recyclable products &/or fined for putting same into landfill. Local authorities, such as Trafford, similarly need to be forced to collect recyclable products that cannot be binned from households which do not possess a vehicle to take same to a local refuse collection point.

Alas, UK governments, of whichever persuasion, are too timid about legislating to force and enforce action. I also suspect that BREXIT will be used as an excuse to scrap the regulations we currently have. It will be interesting to see how much/many of companies' green policies have actually been green-wash!


*

Almost a third of supermarket plasticpackaging (sic) not widely recyclable, Which? finds


Wednesday, 30 May 2018

Crowne Plaza Barcelona - Fira Center, Hotel: a Review

Last June - yes I know nigh on a year ago - my principal carer needed to attend a Pharma conference at the Crowne Plaza hotel next to the Fira Center (sic) in Barcelona. As there were no carers available to look after in my home, Rico had to take me with him. All travel exhausts me, so I knew prior to arrival that I would be holed up in our shared hotel room until I ameliorated.

Lobby & Main Reception

We had taken a taxi from the airport, which dropped us, our luggage and my wheelchair about ten to fifteen metres from the main entrance. There was no doorman to assist Rico with the luggage, supporting me and manhandling the wheelchair. We eventually struggled to get him, me, the chair and the luggage through the revolving-door. No member of staff came to assist either of us. It was not until after being in the hotel several days that a doorman explained that there is a door which can be opened only by staff for easier access by disabled folk, etc. This was not a great start. We were tired from being up early for our flight, the flight itself, driving into the heart of Barcelona and then struggling to actually enter the hotel.

I can speak and understand Spanish quite well, when I have my faculties about me. But by this point I was exhausted and ready to collapse. The young lady at main reception explained that we had been upgraded and that we now needed to go up a couple of floors and check in elsewhere. At said point all we really wanted to do was crash out in our room.

Nonetheless we headed for the lift (elevator) with all our paraphernalia and still no assistance and stepped out to access the Club Lounge.

Club Lounge (i)

We finally could sit down and were offered a beverage, I cannot be sure of my facts after nearly a year but I think Andreu from Sabadell quickly checked us in and explained how the club lounge worked - one's room-key gave one access from breakfast- to closing-time. Theses keys proved rather unreliable, and several times we had to have them refreshed.

The Room

We gladly took our room-keys (the programmed card type) and headed upstairs. I am a fresh air fiend, but alas the windows did not fully open. One could however slide them in such a way as to permit the flow of outside air in, along with any street noise. For siestas we kept the windows ajar. However, at nighttime, we immediately discovered that what seems quiet during the day, transmogrifies into a cacophony at night. So, we had to use the air-con during the dark hours.

Even with the air-con, I was too warm under the duvets. A single sheet option would have been appreciated.



[Image description: the two large, comfortable beds looking towards the windows (top)
and the door (bottom)]



Above, the wide-screen TV, which we barely used other than for the news of a morning. Also a large desk area, which Rico found useful for doing a few computer things for the conference and keeping in touch with his employer. Here also was an instant hot drink-making tray. These facilities were situated opposite the ends of the twin beds.

The bathroom was very clean, with some nice toiletries.



There was a separate wc & bidet behind frosted glass for some privacy. Next to this was the free-standing shower, which appeared mould-free (mold-free). 


The bathtub was ampler than most Spanish tubs, but I imagine Brits and US Americans might struggle to lie comfortably length-ways.


A courtesy robe apiece was also made available.


The only criticisms we had here was loose flooring between the bathroom and bedroom as well as the room needing a freshen-up with new paint.


Club Lounge (ii)

This was a godsend to myself, for I was too unwell to leave the hotel for the first three days, whilst I recuperated from the travel. From my room I could hobble to the lift, descend a couple of floors and walk into the club lounge. There I could prepare myself a beverage, including a wide choice of alcoholic drinks, and pick up a snack. In the morning, after breakfast, there would be pastries, later cold sandwiches & snacks, and in the evening some hot foods would be brought out - or magically appear - depending whether one noticed or not the servers.

Reading matter, daily newspapers, games and TV were also available throughout the day.

And there was always a member of staff at the desk who would try to answer one's queries, book tickets for entertainment on one's behalf or make restaurant reservations.

My main hobby here was either using social media on my laptop or chatting with & making new friends.

Spa

As Rico was busy with his conference, I booked myself in for a massage in the hotel's Serena Spa. A full-body massage lasting just under an hour cost €74. I am used to paying £45 at my local physiotherapist in the UK and on the Costa del Sol I pay between €45-55. For €55 I have twice had a massage with hot stones. There was nothing special about the massage. The masseuse was professional enough but lacked any affability. She did not want to know how I felt afterwards and made no effort, despite my trying in Spanish, to make small-talk.

I was at liberty to use the spa's pool - at the time the hotel's sole pool - but declined as the massage had made me feel relaxed and tired (my usual responses). Had I known I could have used the pool, I should have done so prior to the massage.

Conference Facilities

Rico has attended a fair few conferences over the years - we are both quite mature in years - and was rather excited about the one he attended at the hotel. So much so, that one evening around nineish, he took me to the ground floor to show me the set-up. And whilst there, we saw diligent staff preparing for the next day: moving furniture in/out; putting out literature on tables; erecting signage;…

Main Restaurant

In the club lounge I made friends with two ladies from Vienna (my most favourite place on Earth!), Kristina and her Mater. They had a half-board deal with the hotel. When they attempted to dine in the restaurant they were told they could not order from the restaurant's menu, but would have to have whatever the chef dictated. I am not surprised this outlandish behaviour was offensive to the two ladies. They complained to hotel management and the issue was eventually resolved, but the restaurant staff involved did not apologise to my new friend. I had absolutely no willingness to be treated badly, so gave the restaurant a wide birth.

Staff & Service

Club Lounge staff were ALL delightful, often affable, but always professional even when hotel guests were outright rude to them. I certainly would not have kept such a calm demeanour on being treated badly by mostly Asian sub-continent and Middle-Eastern visitors. On a couple of occasions I felt like telling the guests what for, but that is not my place; so I bit my tongue and kept my opinions to myself. One Indian family permitted their child to climb upon, run over and jump off the furniture disturbing the rest of the guests and showing no respect for others' properties.

I have to say from my own experiences on trying to access/egress the hotel, that the lobby staff were the most unhelpful. I personally did not encounter a single rude member of staff, but, shall I say, some were less than helpful.

Recommendation

Both Rico & I should dearly like to revisit this Crowne Plaza hotel. It's near so many tourist attractions and is on the edge of Poble Sec, an up-and-coming barrio from a foodie perspective. We also wish to try out the new pool-ette on the roof, and imbibe a cocktail from the bar there whilst watching the sunset.